How does a participant’s ongoing experience of the trial affect retention?

  • “Environment is very important, if someone feels comfortable, respected and a valuable member of the team, they are more likely to continue to participate.” (Patient or public member involved in a trial (as a participant or parent/carer of a participant, or as a contributor to design/delivery of trial))
  • “People need to feel engaged in the research. Feeling part of the study will also ensure participants feel connected to the research and realise how important their contribution is.” (A trial methodologist)