9
What information should trial teams communicate to potential trial participants to improve trial retention?
- “Patients and carers are interested in the outcome from being involved, and at the moment feedback is very limited. These opportunities for re-enforcing the message are often missed at the moment. Far more work needs to be done around informing patients about the outcome of trials and the impact on improvement to clinical practice.” (Patient or public member involved in a trial (as a participant or parent/carer of a participant, or as a contributor to design/delivery of trial))
- “Transparency is key, each stage should be clearly explained (the why and how) and results should be available to the participant if they want these.” (Patient or public member involved in a trial (as a participant or parent/carer of a participant, or as a contributor to design/delivery of trial))
- “Participants can tell if follow-up is obviously worthwhile. It helps to explain to the participant what each thing will be used for in the trial so they are more likely to continue in follow-up. Text message reminders are good but including why the data is important. PPI can help wth this.” (A trial methodologist)
